Bowe's Blog

Life with CF!

Testing YouTube

https://www.youtube.com/watch?v=XkKv3iNJ8kI

Vlog – My First 10 Days on Orkambi

I’ve made a little overview video of my first 10 days of using Orkambi.

Orkambi Week 1

Hello everyone,

Today is a special day. Finally, finally, FINALLY I can start with a new drug called Orkambi. It’s the first medicine that treats the underlining cause of Cystic Fibrosis, and I’m lucky enough to have received my first box of this potentially life changing medicine.

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